July 19, 2012
Day -4 (4 days until the transplant)

Manue received her first chemotherapy treatment today along with numerous other drugs... drugs to prevent nauseau, drugs to prevent convulsions, anti-fungal drugs, mouthwash to help minimize mucositis which we can expect to see in about 7 to 10 days after the transplant.

Mucositis - ulcers in the mouth, throat, gut, intestines, anus.  It makes swallowing difficult, eating almost impossible.  A feeding tube will need to be installed (most likely Monday) to help her keep up her calorie intake.


One of the drugs that she received today, one that was to help her be calm and relaxed, did the inverse and got her hopped up.  She was a little monster.  Imagine terrible two's, in the hospital with no where to go, and with incredible amounts of energy.
It all adds up to MONSTER.


I am really lucky that Jessica and I are each spending 24hrs at a time here before getting to stay at home for 24hrs because the amount of things that need to be done here for Manue, eat up so much time.  If it weren't for her, I'm not so sure how we would ride this out.