August 5, 2012
Day 13

Things over the past few days have been much the same... lots of sleep.

Sleep is a good thing because it will help the body recover quicker and if she were awake more, she would just be in more discomfort.

The rough part is that every time she awakes, she vomits.  

Not so much but combined with the mucositis, it is really painful and it is easy to see that she is uncomfortable.

Just today, we noticed an ulcer on her anus and now, when she has a bowel movement, she becomes almost hysterical.

This is really not something that a 3 year old needs to be dealing with.

We are now seeing Manue smile which is a super good thing.  Since the first time she smiled, she had always been one to have a smile.  When the smile is not there, it is upsetting because she's not feeling so hot.

Today when I arrived, she had enough energy to play hide and seek with me - even if she was just hiding under a blanket while sitting on Jessica.

It was fun and encouraging to see.

I was surprised to learn that Manue is in really good shape, considering.  

Many of the kids that receive bone marrow transplants are in super rough shape - morphine all the time plus some other ones to help deal with the pain.  

I can't even imagine what it must be like for the parents of those kids and more importantly, what the poor kid is going through.

I get really angry when Manue is in pain.... not so sure how I would react if she was in more pain than what she is already experiencing.